Brain Injury Charity: Headway and Action for Brain Injury Week
Imagine your life on a clear path, with goals, aspirations, and a sense of who you are. Then, in an instant, everything changes. An accident, a stroke, a fall – these are just a few ways someone can experience an acquired brain injury (ABI), a sudden event that disrupts the normal functioning of the brain. The impact can be devastating, leaving survivors with physical, cognitive, and emotional challenges. But there is hope. Headway, the brain injury association, is a lifeline for survivors, families, and carers, offering support and resources to help navigate the uncharted territory of life after ABI.
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This blog post delves into a conversation between Luca Rado, founder of The Live In Care Company, and Colin Morris, Director of Communications at Headway. Together, they explore the vital work Headway does, the upcoming Acquired Brain Injury Week, and the inspiring stories of resilience that emerge from the face of adversity.
Headway: A Beacon of Support
Headway’s mission is clear: to improve life after brain injury. Their support network extends far beyond the immediate aftermath of the injury. They work to improve the lives of people affected by brain injury, including survivors, carers, and family members.
From the outset, they offer practical and emotional assistance through an emergency fund to ease financial burdens and a nurse-led helpline staffed by compassionate professionals who provide guidance and support.
They offer various services, including:
- An emergency fund to help with financial implications of brain injury.
- A nurse-led helpline for support and practical advice.
- Award-winning publications on brain injury symptoms and effects.
- A brain injury identity card to explain the effects of brain injury.
- Support for a network of groups and branches across the UK that help with reablement (helping survivors recover lost functions and maximize independence).
The brain injury identity card is a discreet and invaluable tool for survivors navigating everyday situations. This card discreetly explains the individual’s brain injury and its potential effects, such as communication difficulties or fatigue. By presenting the card, a survivor can politely explain their situation to someone unfamiliar with their condition, fostering understanding and potentially reducing frustration in interactions with police officers, medical professionals, or even strangers on the street. This empowers survivors to advocate for themselves and ensures they receive appropriate support in various situations.
Action for Brain Injury (ABI) Week is coming up in May (20th to 26th). The theme this year is “A Life Rewritten” which focuses on how brain injury can affect anyone and drastically change their life plans.
Headway has some inspiring stories to share during ABI Week, including:
- David Baker, a former detective who became a commercial photographer after a cycling accident left him with vision problems and unable to return to his previous career.
- Allison, an academic who changed her priorities after a brain injury and focused on her hobby of millinery (hat making).
- Justina, whose mother Liz experienced a stroke at a young age, completely changing their family dynamic as Justina took on a caring role.
- One of the most inspiring stories for this year’s campaign features Andrew Jenkins, a brain injury survivor who reached the final stages of a popular national television show (“The Traitors”). Using this platform, Andrew bravely shared his experience of a life-altering car crash 23 years ago. This act not only sheds light on the challenges of brain injury but also demonstrates the power of resilience and the desire to connect with others who have walked a similar path.
Spreading Awareness: Sharing Stories and Statistics
Headway utilizes various channels to raise awareness during ABI Week. A series of videos featuring interviews with brain injury survivors like Andrew will offer a glimpse into their experiences and journeys of adaptation. Social media plays a vital role, with posts using the hashtags #ALifeRewritten and #ABIWeek2024 encouraging others to share their stories and experiences.
Furthermore, Headway conducted a national survey to gather data on the impact of brain injury. The overwhelming response, with over 3,500 participants, underscores the reach of this issue. The results paint a stark picture:
- 96% of brain injury survivors reported a change in their life after the injury.
- Many survivors face a loss of independence and a shift in hobbies and interests.
- A concerning 70% of survivors reported a decline in mental health, with anxiety and depression being prevalent
- Brain injury also significantly impacts family members and carers who often have to give up their jobs and interests to provide care.
How to Get Involved
- Share Headway’s social media posts about ABI Week.
- Use the hashtags #ALifeRewritten and #ABIWeek2024.
- Volunteer with Headway (visit their website for more information).
- Contact the Headway Helpline for support (open Monday to Friday, 9am to 5pm).
Overall, brain injury is a life-changing condition that can affect anyone. Headway UK is a valuable charity that provides support and resources to brain injury survivors, their families, and carers.
The Live In Care Company support people living with a brain injury. Please contact a member of our team to discuss how live in care can help you.
